2BR News

Contact the News Team:
Tel: 01254 350360

Burnley mum praises hospital for changing daughter's life

grace dole and family on holiday since diagnosis

1:09pm 16th May 2018

[Pictured: Grace (2nd from left) with dad Steven, sister Zara and mum, Louise]

A Burnley mum who saw her daughter go from being a pale and listless child with no energy to a happy and healthy little girl full of life, is thanking hospital staff for diagnosing her with coeliac disease.

Louise Dole, who lives in Burnley, says they feel very lucky that daughter Grace, who will turn seven later this month, was diagnosed at such a young age as many sufferers wait years before it is eventually picked up.

This week is Coeliac Disease Awareness Week, (May 14th to May 20th), which aims to raise awareness about coeliac disease and how it affects sufferers.

 

 

Coeliac disease is a lifelong autoimmune disease caused by a reaction to gluten. This damages the lining of the small intestine.

“Grace lost the quality of her life for a couple of years."

Louise says the difference they have seen in Grace since she went on a gluten-free diet is amazing and she is like a completely different girl.

The family is incredibly grateful to the support and persistence of staff at East Lancashire Hospitals – particularly Grace’s consultant Dr Rosemary Belderbos who went over and beyond to make time for them and care for Grace.

Louise, who also has daughter Zara, three, explains:

“When Grace was just six months old, she had a really bad urine infection which went through to her kidney and she was treated at Royal Blackburn Teaching Hospital.

“They did lots of scans and tests and the hospital staff were really good with Grace.

“They discovered she had bladder reflux and because of that, her left kidney had become damaged.”

Grace was put under the care of a kidney specialist in Manchester and her parents were advised that any time she had stomach pains or was feeling unwell to get her seen to until it was ruled out it was not connected to her kidney or urine.

Grace began associating stomach pain with eating so it was putting her off food and she was losing weight.

Louise explains:

“Grace was really small for her age and had no energy and would come home from school and just go to sleep.

“Grace used to do gymnastics but we had to stop that because she just didn’t have the energy for it.”

When Grace was four, she became very unwell with stomach and back pains and a high temperature and her parents took her to the Urgent Care Centre at Burnley General Hospital, who sent her to the Royal Blackburn.

Doctors ruled out a urine infection but could feel blockages in Grace’s stomach and were not happy to discharge her until they had done more tests.

Louise says: 

“Just before they discharged her, they told us they had ruled out most things but just wanted to do a test for coeliac disease.”

A few days later, the family were contacted by Grace’s consultant who told them the antibodies were very high and it looked like it was coeliac disease.”

A biopsy was carried out in February 2016 and Grace was diagnosed with coeliac disease.

Grace has been on a gluten-free diet ever since and the change in her is remarkable.

Louise says:

“Grace looks like a completely different girl, she used to look pale and have bags under her eyes and a bloated stomach, but now she looks healthy and well and her size and weight is as it should be.

“Dr Belderbos, who has looked after Grace since she was a baby, has noticed a huge difference in her.

“Grace has lots more energy and does contemporary dancing now. She did her first competition in February and came second.

“Grace is really good about following her gluten-free diet. She goes to Read St John’s School and they have been amazing in their support.”

Grace is under the care of Dr Belderbos and her team and Louise says the consultant has been wonderful.

She says: “As Grace’s parents, we were worried and panicked about her when she was ill but Dr Belderbos was always calming and explained everything to us really well.

“She always made time for us and even phoned us during her personal time and has always been very supportive.

“We feel very lucky that Grace has been diagnosed at such a young age.

“I think some people are scared about being told they have coeliac disease as they think a gluten-free diet will be very restrictive, however, there is so much gluten-free food available now and a lot of variety so Grace does not miss out on anything.

“It is important to get a diagnosis of coeliac disease early to avoid damage inside."

Contact Us

If you would like to submit a query or provide more information on this story please get in touch below.

Please wait...
  • Up to 3 JPG or PNG images, 2MB max size
  • We will always endeavour to credit you when we publish your pictures.
  • By uploading you are agreeing to this non-exclusive reuse, royalty-free, across all 2BR platforms, which extends to our partner broadcasters.
  • You retain copyright to all images.
  • If you would like to send us a video, please upload to YouTube or similar and paste the video URL into the message above.

Share This Story

Submit this page to reddit
Suggested articles
Preston Emergency Department

Local hospitals are prepared for winter

They're expecting an increase in patients over the next three months

Most read
girls looking to be adopted

Lancashire sisters looking for a forever home

The search is on to find adoptive parents for the siblings

Police Car

Body pulled out of Haslingden reservoir

Police confirm it's not suspicious

Suggested Articles

Janbaz Tarin jailed for life for murdering ex-wife and her mother after secret life exposed

National News: A 21-year-old man has been jailed for life with a minimum term of 32 years for murdering his wife and her mother after she discovered his secret second family in Afghanistan.

Mother who drowned and burned daughter in 'sacrifice' cleared of murder

National News: A mother who drowned and burned her four-year-old daughter as part of a "sacrifice" has been cleared of murder by reason of insanity.

Thomas Markle says he is being ghosted by 'controlling' daughter Meghan

National News: Thomas Markle has said he is being "shunned and ghosted" by his daughter Meghan during a TV interview.

New government flexible worker safeguards mean little will change, unions claim

National News: Unions and Labour have rounded on government plans to establish a right to clarity on workers' rights in the so-called gig economy, saying they do not go far enough.

Top Articles

Deaf man learns how to communicate in his 70s

Nepal: In the final episode of 2BR's special report from Nepal, we meet the older Deaf people who've only just learned to communicate.

Uganda Appeal: Re-visiting some of the people 2BR met

Local News: A month on, 2BR has a few updates for you

Gary Neville says the next six months are 'critical' for Manchester United to restructure club

Sport: The next six months will be "critical" for Manchester United to "restructure" the club after sacking Jose Mourinho, says Gary Neville.

Penny Marshall: Laverne & Shirley actress and Big director dies aged 75

Showbiz: Actress-turned-filmmaker Penny Marshall, who directed Tom Hanks in the family favourite comedy Big, has died aged 75.

Post-Brexit immigration: An end to EU free movement and no cap on high-skilled jobs

National News: Home Secretary Sajid Javid will outline plans to meet "the clear instruction to get control over our borders" when he reveals a new post-Brexit immigration system.

Trump bans bump stocks after Las Vegas massacre

World News: Donald Trump has banned a gun device which allows semi-automatic weapons to fire like machine guns, after they were used in the Las Vegas shooting.

Post-Brexit immigration: An end to EU free movement and no cap on high-skilled jobs

Business News: Home Secretary Sajid Javid will outline plans to meet "the clear instruction to get control over our borders" when he reveals a new post-Brexit immigration system.

Deer poacher ordered to watch Disney's Bambi during jail sentence for illegal hunting

Strange News: A poacher in the US has been ordered to repeatedly watch the Disney classic Bambi after he was sentenced for illegally killing hundreds of deer.

MORTGAGES: What to expect in 2018

Local News: How you can pay your mortgage off early

Near misses in drowning need to be talked about

Local News: They're the lucky ones - says Lancashire mum

LIVES IN LANCASHIRE: Tom Heaton

Local News: See how the keeper is saving more than just shots in Lancashire

HALF PRICE - Hollywood Star

Non-News: Get your half price voucher for Hollywood Star in Burnley now.

Best love song of the 70s?

On This Day: Well John Lewis have certainly liked it!

VIDEO Something Worth Fighting For

Local News: You've never seen a journalist do this...

Giant cyclist set to be around for the entire weekend

Local News: The giant artwork on Pendle Hill is in celebration of the Tour of Britain

Losing sleep to care for a family member

Local News: Challenges facing the UK's 700,000 young carers

Most Read

Lancashire sisters looking for a forever home

Local News: The search is on to find adoptive parents for the siblings

Body pulled out of Haslingden reservoir

Local News: Police confirm it's not suspicious

Christmas Do Crashers Tatum And Mike 2brs-sleeps-til-santa-2018-with-the-rock-bury-b16d 

@2BR